A Brand New Day

Having now gone through this twice, I can now say with clarity that you wake up in the morning after a night of IVIG and truly feel like your prayers have been answered. For the first night since last Sunday (9 days ago), Jacob slept through the night comfortably for 9 hours. His fever is gone and he has not woken up once with complaints of pain or signs of suffering. And - he's still asleep.

Now we watch and wait. For the next 48 hours we will watch him closely to see if the symptoms decrease and if they do, and he has no fever, then we will be set free!

We look forward to meeting with cardiology today to get the results of the echocardiogram and see if there is any preliminary damage to his heart as a result of the inflamation.

Thank you to everyone for the incredible support we are getting from all of you - we feel the love from our community and also from across the miles.

And - thanks for all the books. Jacob is loving the new variety. (and so will Asher and Remi) If you were thinking of sending a book, hold off for now. Our days of being bed-bound might be behind us!