Tuesday night

Today was a good day. Its been just over 24 hours since Jacob started the IVIG treatment. His last fever was at 6:30 pm last night. His rash has faded significantly. He had enough energy today to be very silly around the docs and play with a lot of new toys and games. This afternoon he spent over an hour with the child life specialist who brought in various medical items that he could play with (rolls of tape, band-aids, stethoscope, and a little doll to practice 'medicine' with). It was really good for him to get out some of his feelings about all that he has gone through and was very interesting to watch him first lash out at his "patient" and then treat him. By the end of it he had him so bandaged up he was unrecognizable.

Cardiology came today after reviewing the images from yesterday with a report of NO damage to his heart. They did say that after considering the labs and images and combined with how well he responded to the IVIG, they are officially diagnosing him with a re-occurrence of atypical Kawasaki Disease. It's very interesting to us and the doctors how Jacob's presentation of it happened. Now it seems pretty clear and his symptoms match Kawasaki the closest, but in the days leading up to yesterday, they were considering everything from appendicitis to Lyme Disease to salmonella to mono. Actually - Jacob just won the medical lottery - the chances of this actually being the outcome were minute.

We have to wait another twenty four hours for observation and then we'll see what the docs say. Tomorrow he will see the ophthalmologist and we will continue checking that his symptoms are improving and temperature remains normal. If so, they are talking about discharging him tomorrow evening. Needless to say, this is the absolute best news!

Thanks everyone for checking in and for your support.