Wednesday, October 14, 2009

Start Spreading the News...

we're (probably) leaving today...

Jacob is doing GREAT! He went to the opthomologist this morning and his eyes are completely clear with no inflammation! He has not had any more fever and his rash is almost completely gone. As long as he does not have any fever today he will be discharged at 7:00 tonight!

So - here is his crazy story in a nutshell:

On the first week of October 2007, Jacob (3) came down with a strange rash and high fever that resulted in him being diagnosed with ATYPICAL Kawasaki Disease. On October 8, 2007 he was given his first round of IVIG which helped but did not completely work and 2 days later he had a second dose which was successful. He had no heart problems as a result.

On the first week of October 2009, Jacob (5) had severe stomach pain and fever. His story unfolded very differently this time but in the end, doctors all agreed that it might be possible that he had Kawasaki Disease again and began the IVIG treatment on October 12. As they say, hindsight is 20/20 and now that they have seen how he responded to the IVIG they are positive that he has a recurrence of KD - this time not ATYPICAL. His symtoms fit the classic definition of KD difinitively this time. The hesitation was that it is extremely rare for a caucasion kid to have a recurrence which is prominent mostly in Japanese kids.

The doctors are blown away. This morning I ran into the pediatrician who saw us the day we were admitted and she said that she could not believe that this is what it was. She would never have known.

PS - all his rheumatology tests came back negative with the exception of one that is still out.

We are thrilled with this result as it is not something that Jake will have to live with for the rest of his life. He will be followed very closely by cardiology during the first year, but as long as his heart remains healthy, he will be able to resume his normal life and activity as early as tomorrow!

Thank you all!

No comments:

Post a Comment